- The Patient Voices newsletter issue 3
- The Patient Voices newsletter issue 2
- The Patient Voices newsletter issue 1
What's new?
The Patient Voices programme is continually growing. This page details changes to the website so you can keep up to date with new stories and key developments. General news about what's happening in the programme is in the newsletter, which you can read by clicking on the links at the left.
Don't miss out – if you would like to be notified of developments to the programme, changes to the website, or the release of new stories, rather than having to come back to the website to check to see if new stories have been released, please join the Patient Voices discussion group using the link on the contact page.
Distribution of these stories is funded solely by Pilgrim Projects as a social enterprise. Please let us know how and when you use the stories, so that we can use your experiences to persuade sponsors to support the development of more stories for everyone to use.
16th August 2008
As part of ongoing research into the use of the Patient Voices digital storytelling methodology as a reflective tool in medical education, Pilgrim Projects and Leicester University Medical School offered a digital storytelling workshop to final year medical students as a student selected component (SSC) of their training. Seven new stories, told by junior doctors, were the result.
10th July 2008
A series of ten new stories, 'The story of an eagle', 'A second chance', 'Our journey in life', 'Don't knock on my door', 'I remember them', 'Healing', 'Mooshum', 'My family', 'Grandpa's inspiration' and 'Why me?', are released. These stories were created in a CDS workshop (co-facilitated by Pip Hardy) in Saskatoon, Saskatchewan, as part of the evaluation of the Live Well™ with Chronic Conditions Program for Aboriginal people.
8th July 2008
Five stories, 'Max and me', 'Magic light switches', 'Eric's first fifty years', 'I'm back!' and 'My dear friend Arthur', in the series 'Arthur & Co.: stories about living with Arthritis', are released.
3rd June 2008
'Christmas' and 'Be yourself', the first two in a series of stories around issues of faith, calling and vocation, told by members of the Society of the Holy Child Jesus, are released.
25th May 2008
Two more stories 'Once upon a time...' and 'A long and troubled road' in the 'Healing journeys' series are released.
14th May 2008
The first five stories, 'My little lost boy', 'Jane and Peter's journey', 'Peaks and troughs', 'Fragile: deliver with care' and 'Something from nothing' in the 'Healing journeys' series are released. These stories were created by service users in a Patient Voices workshop that took place in March 2008 at the Sheffield Hallam University Occupational Therapy department.
17th April 2008
The third edition of the Patient Voices newsletter is now available from the links at left.
14th April 2008
Two new stories are released. 'The other side of the bed', which was created at a Pilgrim Projects digital storytelling workshop, and 'Not just a healthcare assistant' from the Royal College of Nursing.
29th March 2008
The final story, 'I used to sit in this chair', in the 'Work in Progress' series is released.
24th March 2008
Three more stories, 'Not just a piano tuner', 'Tip off' and 'Filling the void', in the 'Work in Progress' series are released.
10th March 2008
The first three stories, 'A fish out of water', 'I've got it all' and 'Worth more than a bouquet of flowers', in the 'Work in Progress' series are released. These stories have been told by disabled people in order to share the experiences, challenges and successes of their careers.
The order in which groups of stories are listed down the left hand side of pages has been reversed, so that the newest groups of stories are at the top of the page.
19th February 2008
Another story from Pilgrim Projects, 'Cycling down memory lane' is released.
30th January 2008
Another story from the 'Interpreting Tales' series, 'What would you do?' is released.
An updated schedule of digital storytelling workshops is now available on the Workshops page
25th January 2008
Another story from the 'Interpreting Tales' series, 'The cost of interpreting' is released.
A story from Pilgrim Projects 'Taking my life back', in which a patient describes her realisation that she would have to manage her own care for the Fibromyalgia that was ruining her life, is released.
1st January 2008
To start 2008, another story from the 'Interpreting Tales' series, 'The unlikely interpreter' is released.
December 2007
To round off 2007, another story from the RCN Quality Improvement Programme dealing with issues around continence care and dementia, 'Losing Mary', is released.
Two more stories ('So many words...' and 'Too much of a faff') in the 'Interpreting Tales' series are released.
We have released a series of nine stories ('Full of beans', 'Thank you very much', 'I am very lucky', 'Iman', 'The third time...', 'Two for the price of one', 'A fighter from the start', 'When the clock stopped' and 'Nothing but the baby in my tummy') around mothers' experiences of neonatal care for premature babies.
The second issue of the Patient Voices newsletter is released – just in time for Christmas. Click on the link at the left to read it.
A new story, 'Surviving', created by a participant in a Pilgrim Projects story-telling workshop is released.
November 2007
An updated schedule of digital storytelling workshops is now available on the Workshops page
The first seven stories ('A change of heart', 'The world through another person’s eyes', 'Please help us...' 'The naked truth', 'Yasmin', 'The world is full of remedies' and 'Lost in translation') in a new series are released to the website. These stories are part of the 'Interpreting Tales' series, which is the result of a collaboration between Cintra, INTRAN, HITS and TIP, and has been made possible with funding from EEDA. Told by interpreters, service users and service providers, the stories are intended to highlight the need for professionally qualified interpreters where English is not the first language in order to improve access to all public sector services, and especially to reduce health inequalities and improve health outcomes.
Added a link from the 'The stories' page to a note on how to use the stories from within a PowerPoint presentation.
A story created in a Pilgrim Projects story-telling workshop earlier this year 'Knitting' is released. For a relative or a carer the language of healthcare can be harsh, frightening, guttural and unfeeling - even when interpersonal relationships are strong and care is effective. This story uses a written style that attempts to highlight that contrast.
October 2007
Two new stories created by participants in a Pilgrim Projects story-telling workshop 'CPR' and 'Only connect: a life in stories' are released.
August 2007
Two new stories from Pilgrim Projects and the RCN Quality Improvement Programme, 'Getting it right' and 'Out of reach' are released.
Another story from the RCN Quality Improvement Programme dealing with issues around continence care and Parkinson's, 'Christmas with Mum' is released.
Two new stories from the RCN Quality Improvement Programme dealing with issues around continence care and Parkinson's, 'Simple solutions' and 'I wouldn't have started from here' are released.
The first issue of the Patient Voices newletter is available to download.
Another story from Pilgrim Projects, 'Something for free' is released.
Inverted the table of stories on the 'Find a story' page, so that the newest stories are at the top.
Added details of the current Patient Voices workshop programme to the Workshops page. Come along and learn more!
July 2007
Released six new stories 'The best Dad in the world', 'See me now', 'There's more to life…', 'From pillar to post', 'A much stronger family' and 'If I had to go through it all again…', all from ‘Having a stroke: being a parent’, the result of a collaboration between Connect, Guy’s and St Thomas’ Charity, and the Stroke Modernisation Initiative.
Pip Hardy's Masters thesis 'An investigation into the application of the Patient Voices digital stories in healthcare education: quality of learning, policy impact and practice-based value' is added, along with other papers and publications, to a new 'Research' page.
All website pages get a quick tidy-up to improve behaviour with Safari and Firefox browsers.
June 2007
Another story from the RCN Quality Improvement Programme, 'Nil by mouth' is released. Another story from the Heart Improvement Programme, 'A moving story' is released.
May 2007
Added a page describing the Patient Voices workshop programme.
April 2007
A third story from Connecting for Health, 'Leanna' is released.
March 2007
Creating an Interprofessional Workforce (CIPW), a 3-year programme funded by the Department of Health and hosted by NHS Southwest, has launched the John Horder Award for Innovation as a way of recognising innovation in interprofessional learning and development. This year, the Patient Voices programme was runner-up, and Pip Hardy was delighted to accept the award at the Higher Education Academy Festival of Learning.
Our postcode was changed, so began a rolling programme of updating and re-rendering stories.
Three more stories from the RCN quality improvement programme, 'Where do you draw the line?', 'Getting to the bottom of things' and 'An open-door policy' were released.
Another story from the Heart Improvement Programme, 'Working at the hub' was released.
Another story from the Carers' Resource, 'A plea for dignity' was released.
A second story from Connecting for Health, 'Getting in ... and getting out' is released.
January 2007
We started 2007 by releasing 'Family matters', 'Just John's wife', 'Don't give up', 'Learning to care is part of the job', 'My Michael', 'Just Jack', 'Why am I not the expert?', 'Please, just listen'and 'A permanent holiday?' – nine stories from the Carers' Resource, Harrogate, Craven and Airedale.
Two more stories from Pilgrim Projects, 'The Dormouse and the Doctor' and 'A tribute to St Nicholas' Hospice' were released.
A story from Connecting for Health, 'The nurse's tale' was released.
The first story from the RCN quality improvement programme, 'She always liked to feel useful' was released.
Another story from the RCN PDF programme, 'Imagine a world' was released.
As the number of stories available was now approaching 70, we added the 'Find a story' link to the title bar of each page. This currently goes to one page listing all the stories, together with their descriptions and some keywords. Each story is linked back to the page from which it can be played. Eventually this will become a search page.
December 2006
Uploaded a new version of 'Getting the balance right' to improve audio quality. Rendering the compact versions for the website can sometimes affect audio quality – please let us know of any stories that cause problems.
November 2006
Added information on how to play the movies on a Macintosh.
Added a feedback questionnaire to the contact page. Feedback on all aspects of the programme is always eagerly awaited.
October 2006
In order to help share experience and practice of using and making Patient Voices digital stories, we have set up an online discussion group. We would like to invite you to join the Patient Voices community of practice, where you can check in from time to tell us how you are using the Patient Voices digital stories, or what we could do improve the stories or the website. And of course, we are always happy to hear from new storytellers! To join the group, just email us your details from the contact page on this website.
'A world of difference', the first in a set of stories around issues of professional development from the Royal College of Nursing PDF programme is released.
'Pushing water uphill', 'Working together towards self-care', 'A painful story' and 'What I’ve learned from my dad', four more stories from the Working in Partnership Programme relating to self-care are released.
Released 'Reconnecting with life: stories of life after stroke'. This set of stories is about the experience of living with stroke and aphasia and how people move forward with life after stroke.
Another story from the Heart Improvement Programme, 'Getting the balance right' is released.
September 2006
A story from Pilgrim Projects, 'Bicycle clips!' is released.
Another story from the Heart Improvement Programme, 'A tap on the shoulder' is released.
Added 'For the love of Lee', the first story from the Working in Partnership Programme.
Another story from the Heart Improvement Programme, 'A common language?' is released.
Two stories from the Department of Risk Management, NHS Tayside are added – 'Jimmy's story' and 'Sixty seconds to go...'
August 2006
Added the paper Patient Voices: an investigation into improving the quality of healthcare using digital patient stories.
Added the presentation Voices from the heart of healthcare, which provides an introduction to the programme.
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